Online Prostate Cancer Support: The Good, The Bad and The Ugly

Online Prostate Cancer Support: The Good, The Bad and The Ugly
Living & Loving with Prostate Cancer The Good If you’ve been diagnosed with prostate cancer, there are a number of fantastic resources available to you. I spent a great deal of time visiting online support forums. What I liked best was the anonymity. You sign in with a screen name, and no one knows who you are. This enabled me to feel comfortable asking embarrassing questions. For example: “Anyone else find themselves urinating during an orgasm?” I was amazed that I could ask any deeply personal questions and expect that I would receive multiple answers. Help with practical issues was available as well. When I wanted to know about buying diapers, I’d go online to a forum to ask, “What’s the best brand of diaper to buy?” Men would share their experiences and make recommendations. I can’t say enough about the positive elements of online forms. The Bad It took me years to realize that all the support I received online wasn’t helping Brenda at all. In fact, the more time I spent online with other men coping with prostate cancer, the more isolated and alone she felt. There are advantages to attending a person-to-person support group with your partner. Prostate cancer is a couple’s disease, but I felt the issues we were coping with were too embarrassing to discuss in person, so I refused to attend any local support groups. I believe my relationship with my wife suffered, because I neglected to find places where we’d experience mut
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Rick Redner received his master’s degree in social work from Michigan State University. He has spent many years working as a medical and psychiatric social worker He is the author of the award winning book I Left My Prostate in San Francisco-Where's Yours? His second book Everything You Never Wanted to Know About Erectile Dysfunction and Penile Implants won the Beverly Hills International Book Awards in Men's Health in 2016. Additionally, the book was a winner in the 2017 IAN Book of the Year Awards.

2 comments

  1. Chris O'Neill says:

    “The Ugly”

    There are also those who are completely self-centred in their attitudes. For example, some men question why you should have any interest in sex at all since they are more than eighty years old and they don’t have any interest in sex. There are men who have had a prostatectomy and had no adverse side effects at all and then declare “this is yesterday’s problem. I don’t what all the fuss is about.” It’s excruciating to hear these claims.

    But the most self-centred of all are the medical practitioners who give you advice that is tainted by financial self interest.

  2. Willie Cottrell says:

    It is very important for everybody to support the people suffering from prostate cancer. It is necessary for them to get proper treatment along with the emotional and personal support.
    I read an article recently giving common Prostate cancer treatment options Long Island( http://www.advancedradiationcenters.com/cancers/prostate-cancer/ ) according to the stage diagnosed at

    Stage I Watchful waiting
    Radiation therapy( ) or radical prostatectomy

    Stage II Radical prostatectomy
    External beam radiation and brachytherapy, alone or combined

    Stage III Combinations of external beam radiation, hormone therapy, brachytherapy, and radical prostatectomy
    Watchful waiting
    Hormone therapy, sometimes with chemotherapy

    Stage IV Combinations of external beam radiation, brachytherapy, and hormone therapy
    Radical prostatectomy
    TURP surgery
    Bone metastases treatments

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