Early in my journey with prostate cancer, I believed there would come a time when I’d stop thinking about prostate cancer. Seven years into this journey, I still think about prostate cancer every day.
I’ve asked groups of men and caregivers how many times they think about prostate cancer in a day. Their answers amazed me. Those on the low side said 5-10. Those on the higher side said 15-20. Only a few said hardly ever.
There are specific events in the life of a prostate cancer patient that increases the likelihood men or their partners will think about prostate cancer frequently in the course of a day. Some of those events are:
- Waiting for biopsy results
- Waiting for PSA testing results
- Waiting for bone scan or other test results
- The days before, during, or after treatment, of any kind
- While coping with any side effects of prostate cancer treatment
- Days before, during, or after receiving an update on the progression of your cancer
These events predictably cause an increase in the number of times a patient or caregiver will think about prostate cancer. Most of us with prostate cancer also deal with everyday reminders. For example, in order for me to stay dry and avoid leaking urine, I have to monitor my bladder every hour. If it gets too full, a cough, bending, or sneezing will cause me to leak urine. Dealing with this iss