- clicking “count me in” on the website, and completing a short form covering demographic information and medical history.
- signing an online consent form to give MPC researchers permission to collect their samples and data — after which they will receive saliva and blood-biopsy kits. The samples will allow researchers to compare patients’ genetic information with tumor DNA.
- signing up to receive regular updates as the project advances. Researchers will share any discoveries from the initiative, and may ask additional questions about patients' experiences to help with future studies.
A new patient-partnered initiative aimed at encouraging men with metastatic prostate cancer to collaborate in research has been launched by the Broad Institute of MIT and Harvard and the Dana-Farber Cancer Institute. The online platform, called the Metastatic Prostate Cancer Project (MPC), allows men in the United States and Canada to volunteer medical data and help advance knowledge of the disease that is estimated to take 30,000 lives each year in the U.S. So far, 220 men from both countries have enrolled in the program. Patients can join the project by: